About Session
The Australian National Child Hearing Health Outcomes Registry’s (ANCHOR) mission is to collect and connect child hearing health information into a national data system to drive service improvements and research insights that single studies cannot achieve alone. This presentation will illustrate the importance of stakeholder engagement and genuinely inclusive co-design to ensure a national data system will be built according to the needs of those with lived experience. The goal is to create a data system that enables children who are deaf and hard of hearing to reach their best potentials.
By the end of this session, the learner will be able to:
- Co-design research that is accessible, language inclusive, and culturally safe for the deaf community.
- Build ongoing relationships with key stakeholders to support the development of research that is genuinely inclusive.
- Innovate ways of building an enduring Learning Health System for childhood hearing loss.
This session is supported by the National Institute On Deafness And Other Communication Disorders of the National Institutes of Health under Award Number R13DC022792. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
About the Speaker:
Valerie Sung, MBBS(Hons), FRACP, MPH, Ph.D., GAICD | Murdoch Children’s Research Institute (Australia)
Associate Professor Valerie Sung is a consultant pediatrician at Melbourne’s Royal Children’s Hospital, Principal Research Fellow and Co-Group Leader at the Murdoch Children’s Research Institute, and Honorary Clinical Associate Professor at the University of Melbourne. Her clinical and research program on child deafness was recognized by a 2019 L’Oréal-UNESCO Australia For Women in Science Fellowship.
