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Our Advocacy Work

Ensures that children and adults who are deaf and hard of hearing have access to advanced technology and opportunities to develop Listening and Spoken Language, empowering them to reach their full potential.

Our Focus Areas

Qualified Providers

All individuals have access to qualified, evidence-based professionals—including those who hold the Listening and Spoken Language Specialist (LSLS®) credential—is essential to achieving strong, measurable outcomes.

Parent Information

Families deserve transparent, reliable information about professional qualifications and service quality so they can make informed choices.

Early Access

Ensuring children who are deaf and hard of hearing receive early access to technology, skilled intervention, and high-quality education so they can can fully participate in school, work, and community life.

Tomorrow's Voices

Empowering young adults who are deaf and hard of hearing with the self-advocacy skills, confidence, and tools they need to communicate effectively and thrive in all areas of life.

be the change

Advocacy in action

Get inspired by families like yours and local organizations making a powerful difference for children and adults with hearing loss.

We invite you to share your advocacy and public policy stories, from advocating for state legislation to raising awareness in your community. Your experience can inspire and guide others. To submit your story, please email AG Bell’s Public Policy team at [email protected].

Advocacy Toolkits

The AG Bell Advocacy Toolkit is designed to help parents, professionals, and community members advocate effectively for individuals who are deaf or hard of hearing. It provides clear, practical guidance and easy-to-use resources for common advocacy situations.

The toolkit covers advocacy in key areas, such as early intervention, education, healthcare, employment, and community settings. It also supports different goals, whether someone is advocating for services, accommodations, or long-term opportunities. The toolkit includes resources for people advocating on behalf of individuals who are deaf or hard of hearing, helping ensure access to the right supports and services in every environment.

At the core of the toolkit is a developmental framework that explains how self-advocacy skills grow over time. This framework helps individuals who are deaf or hard of hearing build the knowledge, confidence, and skills needed to speak up for themselves—from early childhood through adulthood.

Live Legislative Tracker

AG Bell’s live legislative tracker contains all legislation relevant to AG Bell member interests across all 50 states and is updated regularly by our Public Policy team.

Bookmark this link to stay up-to-date with us!

Meet Our Advocacy Team

AG Bell’s advocacy team is a dedicated group of passionate professionals with more than 50 years of collective experience advancing policies and practices that support individuals who are deaf and hard of hearing. The team works collaboratively to elevate voices, influence decision-makers, and promote equitable access to education, communication, and opportunity.

Joni Alberg

Senior Development & Operations Specialist

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Joni Y. Alberg, Ph.D., is a seasoned nonprofit leader, educator, and author with 45 years of experience spanning special education, administration, research, and executive leadership. She currently serves as Senior Development & Operations Specialist, bringing strategic expertise in organizational growth, program development, and operational excellence.

Dr. Alberg is the author of Linking Children to Sound BEGINNINGS: The Case for Early Intervention in North Carolina. She previously served as Executive Director of BEGINNINGS For Parents of Children Who Are Deaf and Hard of Hearing, Inc., where she led initiatives to expand access to early intervention services and strengthen family support systems across the state.

She holds bachelor’s and master’s degrees in special education from Florida State University and a doctorate in special education from the University of North Carolina at Chapel Hill. Throughout her career, Dr. Alberg has been committed to improving outcomes for children and families through advocacy, education, and system-level leadership.

Gabriella Morreale

Advocacy and Public Policy Consultant

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Gabriella is the Advocacy and Public Policy Consultant for AG Bell and is passionate about ensuring equal opportunity for all deaf and hard of hearing individuals across the globe. Gabriella graduated from Davidson College with a bachelor’s in Communication Studies and has been involved in disability advocacy work for the past five years, using her own hearing loss experience to inform her work at AG Bell. She was diagnosed with bilateral hearing loss at birth and now wears a hearing aid and a cochlear implant. Gabriella now resides in Washington, D.C., empowering AG Bell members with the skills they need to advocate for deaf and hard of hearing individuals in their own communities. 

Regan Brady

Advocacy Chair, Young Leaders Board

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Regan Brady was born with a profound bilateral hearing loss and has been an advocate for the deaf community since childhood. She authored a book about her experiences growing up with cochlear implants and has supported legislation and awareness campaigns to promote access and opportunity for individuals who are deaf and hard of hearing.

Regan earned a Bachelor of Arts from Harvard University in 2022, graduating with High Honors in Economics and a secondary field in History. Professionally, she has experience working with nonprofit organizations and research institutions and currently serves as an Analyst at Linse Capital, a technology-focused growth equity fund.

As a member of the AG Bell Association’s Young Leaders Board, Regan seeks to contribute her experience, dedication, and unique perspective as a deaf individual committed to making a meaningful and positive impact.

James Dover

Advocacy Co-Chair, Young Leaders Board

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James Dover is from Belmont, North Carolina, and will be attending Yale University this fall, where he plans to major in the History of Science, Medicine, and Public Health. He has single-sided deafness in his left ear and wears a MED-EL cochlear implant with the new SONNET 3 processor.

An avid tennis player, James also enjoys reading fantasy series and appreciates a good latte. He is a proud advocate for the deaf and hard of hearing community, with a strong passion for raising awareness and encouraging others about life with hearing loss.

Our Official Position Statements

AG Bell has taken an official position on many issues related to the success and quality of life of individuals with hearing loss, beginning with our Community Code of Kindness. Created in collaboration with 6 other national organizations that support individuals with hearing loss, this code guides our commitment to respect families’ decision making processes, welcome different perspectives, opinions and experiences, and make space for everyone to contribute.

The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) fully supports the recommendation by the Joint Committee on Infant Hearing, published in 2007 by the American Academy of Pediatrics, which states “families should be made aware of all communication options and available hearing technologies in an unbiased manner.”

AG Bell serves as a resource and advocate for those parents and individuals who choose to pursue the option and outcome of spoken language. AG Bell supports the development of spoken language through evidence-based practices focusing on the use of audition and appropriate technologies.

For families who choose to include communication approaches in addition to spoken language, AG Bell continues to provide support and resources with regard to listening and talking. Families and individuals wishing to learn about additional communication approaches are referred to other organizations that can provide relevant information and appropriate resources.

AG Bell works to expand the number of highly qualified professionals to ensure that all families who desire a spoken language outcome will have early and ongoing access to appropriate listening and spoken language services and resources.

AG Bell serves on a variety of coalitions that include organizations that support other modes of communication, such as Cued Speech, Signing Exact English, Total Communication and American Sign Language. Examples of these coalitions include the Joint Committee on Infant Hearing, the Deaf and Hard of Hearing Alliance, and the Council on Education of the Deaf, among others.

Approved by the AG Bell Board of Directors by a unanimous vote June 26, 2008.

The mission of the Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) is to advance listening and spoken language for individuals who are deaf and hard of hearing. Cochlear implants for children with hearing loss, combined with appropriate habilitation, can provide a key to making that independence achievable.

AG Bell has long-advocated cochlear implants for adults. In 1992, AG Bell advocated cochlear implants for children whose parents have been thoroughly informed of potential advantages and risks, who have been properly evaluated by qualified professionals, and who have been declared suitable candidates. Since then, the evolution of cochlear implant technology has continued to demonstrate the efficacy of these devices in allowing a child with hearing loss to access spoken language.

In order to make use of cochlear implants for the acquisition of spoken language, children must learn to fully utilize the rich array of auditory communication cues contained in speech. Auditory learning integrated with social, emotional and cognitive development is crucial to proficiency in the use of spoken language. Activation of the auditory pathway with cochlear implants must be combined with these other elements essential to communication and early language learning. Research supports that children with cochlear implants can develop speech perception skills and abilities that significantly enhance their acquisition of spoken language and literacy.

A key factor that influences spoken communication performance with cochlear implants is the age of receiving an implant(s). It is now appropriate for children to receive implants at a very young age. This trend has been reinforced by the accurate and early diagnosis of hearing loss. Providing young children with access to sound during early critical periods has a profound impact on acquisition of spoken language. Current research further substantiates that children who receive implant(s) at an early age can demonstrate impressive growth in spoken language and literacy achievement comparable to the levels of their peers with typical hearing.

Cochlear implant technology brings with it a responsibility to support this new access to sound. An appropriate educational intervention program optimizes the integration of auditory learning with spoken language and literacy skills. Teachers and clinicians with appropriate educational preparation and experience are essential to ensure successful spoken language acquisition for children with cochlear implants and their families. It is the skillful combination of lively human interaction and cochlear implant technology that stimulates the maximum development of spoken language competence. AG Bell continues to support cochlear implants in adults.

The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) fully supports the recommendation by the Joint Committee on Infant Hearing, published in 2007 by the American Academy of Pediatrics, which states “families should be made aware of all communication options and available hearing technologies in an unbiased manner.”

AG Bell recognizes that there are various options regarding language choice, including spoken and signed languages throughout the world. AG Bell also recognizes that there are numerous communication approaches and educational methods that incorporate audition, signs, and various combinations of both speech and sign.

AG Bell acknowledges that a chosen approach depends on culture, family interests, and desired communication outcome. AG Bell believes that the language and communication approach chosen should be based on an informed decision made by the child’s parents/family and based on their own unique circumstances.

With respect to American Sign Language (ASL), AG Bell acknowledges ASL as a language in and of itself. AG Bell also recognizes ASL’s importance in Deaf culture as a unique feature, and a language that many take pride in learning. AG Bell does not believe that ASL should be prohibited or restricted as a choice, nor does AG Bell advocate against learning ASL as part of a child’s overall development if that is what the child’s parents desire.

Regardless of chosen language or communication approach, AG Bell believes that families should have early access to professionals with specialized education and training in the desired language or communication method.

AG Bell serves as a resource for those parents and individuals who choose to pursue a listening and spoken language outcome for their child or themselves. For those who choose to include additional communication approaches, AG Bell continues to provide support and resources with regard to listening and talking. Families and individuals wishing to learn about those additional communication approaches are referred to other organizations that can provide relevant information and appropriate resources.

It is important that organizations that advocate for or work with individuals with hearing loss work together to broaden health care providers’ understanding of all communication methods so that upon identification, unbiased information about all options can be made available to parents and their children.

Through its participation in a variety of coalitions, AG Bell collaborates with organizations that support other modes of communication, such as Cued Speech, Signing Exact English, Total Communication and American Sign Language (ASL). Examples of these coalitions include the Joint Committee on Infant Hearing, the Deaf and Hard of Hearing Alliance, and the Council on Education of the Deaf, among others.

Approved by the AG Bell Board of Directors by a unanimous vote June 11, 2008.

It is the position of the Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) that a Listening and Spoken Language Specialist (LSLS™) is a qualified provider for children with hearing loss who are pursuing listening and spoken language. The specialty skills of a LSLS certified professional are critical in a child’s journey to acquire spoken language; this is especially important following the fitting of hearing aids or the activation of a cochlear implant.

AG Bell fully supports the recommendation by the Joint Committee on Infant Hearing (2007) that families should be made aware of all communication approaches and that this information should be provided in an unbiased manner. For families who choose to include goals for listening and spoken language in their child’s family support and education plans (e.g., IFSP or IEP), this position statement defines the qualifications of a LSLS certified professional and the role this professional should serve in the child’s language development. The process for LSLS certification enhances professionals’ qualifications and their ability to address children’s listening, spoken language communication and educational needs.

AG Bell supports the development of communication for children who are deaf or hard of hearing through evidence-based practices. To support this commitment, AG Bell recognizes a LSLS as a professional who has earned certification from the AG Bell Academy for Listening and Spoken Language. To hold the LSLS credential, individuals must meet high-level requirements in addition to the standard teacher and clinician preparation programs; it is a rigorous credential that demonstrates these professionals have satisfied stringent requirements for continuing professional development, completed a mentored practicum experience, and passed a comprehensive qualifying examination. The practical aspects of the training assure each LSLS certified professional demonstrates requisite knowledge, skills, and abilities to facilitate development of a child’s listening and spoken language.

A LSLS certified professional follows developmental models of listening, speech, language, cognition, and communication; uses evidence-based practices; and strives for the best possible outcomes in listening, spoken language, and literacy for children who are deaf or hard of hearing. AG Bell works to increase the number of qualified professionals to ensure that all families desiring a spoken language outcome for their child have early and ongoing access to appropriate listening and spoken language services and resources.

LSLS certified professionals focus on education, guidance and the rigorous application of techniques, strategies, and procedures that promote optimal acquisition of spoken language through listening. Professionals who hold the LSLS certification offer specialized services based on standardized educational preparation, core knowledge, and verification of professional experience. LSLS certified professionals are prepared to work with children of all ages, including infants and toddlers, children in preschool and kindergarten, and school-age students. The certification for LSLS certified professionals provides parents and guardians a method of identifying teachers of the deaf or hard of hearing, speech-language pathologists and/or audiologists who have demonstrated expertise in using listening and spoken language techniques. A LSLS certified professional may work directly with a child or student and their family. The LSLS certified individual also may provide consultation to other professionals serving the child, including the general education teacher or the child’s audiologist.

Background and Related Initiatives

AG Bell supports and advocates for the families of children who are deaf or hard of hearing, for adults with hearing loss, and for the teachers and therapists who provide professional services to them. For more than a century, AG Bell has strived to ensure that every child and adult with hearing loss has the opportunity to listen, talk, and thrive in mainstream society.

Federal policy has long favored the access of people with disabilities to the mainstream through the provision of public accommodations and education (IDEA, 2004; ADA, 1990, 2008; Section 504, 1973, 2008). In addition, the Early Hearing Detection and Intervention Act of 2010 revises previous legislation (Newborn Infant Hearing Screening and Intervention Act of 1999, incorporated as Title VI of the Labor, Health and Human Services and Education Appropriations Act of 1999) for infants and toddlers with hearing loss under 36 months of age. The 2010 legislation increases the focus on activities related to appropriate professional intervention and specifically mentions the need for providers who are highly qualified along with the recruitment, retention, education and training of qualified personnel.

Federal special education legislation has provided the underlying support for qualified teachers for more than 30 years (P.L. 94-142, 1975; IDEA, 1997; IDEA, 2004). Federal regulations state it is the responsibility of each state education agency to establish and maintain qualifications to ensure that personnel necessary to carry out the purposes of the law are appropriately and adequately prepared and trained [34 CFR §300.156(a)]. This responsibility also applies to personnel delivering related services to assist a child with a disability to benefit from special education (34 CFR §300.34). Based on the language in the Elementary and Secondary Education Act (1965), personnel are to be highly qualified when working with children 3-21 years of age. When serving children birth to three years of age, professionals must meet standards for being fully and appropriately qualified [20 U.S.C. § 1435(a)(8)(A)(ii)].

Unfortunately, despite the intent of the law, many children who are deaf or hard of hearing are not provided access to the high level of qualifications achieved by a LSLS certified professional.

Trends

This position statement should serve as guidance for the development of new legislation or regulations, or for revision of existing laws and their associated regulations and guidelines to support access to qualified professionals who can promote a child’s development of listening and spoken language. The Gallaudet Research Institute (2008) reports that 52% of students who are deaf or hard of hearing nationwide learn in speech-only environments. An additional 35% of the nation’s students who are deaf or hard of hearing use speech with accompanying signs.

A Government Accountability Office (GAO) report, Deaf and Hard of Hearing Children: Federal Support for Developing Language and Literacy (GAO-11-357) was issued May 25, 2011. The report described the extent of hearing loss among children in the United States; settings in which these children are educated; factors that have been shown to help these children acquire language skills; and challenges to the provision of appropriate interventions. In this report, parents, educators, and advocates agree that while decisions about a child’s education should be based on his or her unique needs as required by IDEA, the cost or availability of services often determines what a child receives. Some of the stakeholders cited in the report stated that schools may be hesitant to provide particular special education services because the costs incurred would be prohibitive. However, the law is clear: IDEA requires schools to provide an individualized education to children with disabilities based on input from a team that includes specialists working in cooperation with school staff and parents when making decisions about how to meet a child’s needs.

State initiatives are beginning to recognize LSLS certification for personnel who provide services to children who are deaf and hard of hearing, and who are pursuing a listening and spoken language outcome. The Florida Public School Accountability Act was signed into law in June, 2011 (CS/CS/HB 1255). This act adds LSLS certified professionals to the list of specialized instructional service providers for children who are deaf or hard of hearing and pursuing a listening and spoken language outcome, and it defines standards for auditory-oral education (i.e., communicating through listening and spoken language). This forward-looking law allows parents to enroll their child in either a public or private auditory-oral program with funding for that child’s education allocated under Florida’s special education funding matrix. This is consistent with federal requirements for professional qualifications, because the LSLS certification offered and monitored by the AG Bell Academy for Listening and Spoken Language defines a professional who has a high level of qualifications.

Summary and Future Directions

AG Bell recommends that LSLS certification should be an internationally-recognized quality indicator in English-speaking countries for professionals who are highly qualified to serve children who are deaf or hard of hearing and their families who choose listening and spoken language for communication. LSLS professionals are certified by the AG Bell Academy for Listening and Spoken Language after completing stringent continuing professional education and supervised mentored practice over several years, and having passed a thorough, comprehensive examination. By meeting the requirements of the AG Bell Academy, certified LSLS professionals demonstrate that they have met the highest professional standard available in the area of listening and spoken language. LSLS certified personnel are thoroughly prepared to provide an appropriate educational or therapeutic intervention program that integrates auditory learning with spoken language skills. Further, in order to maintain certification they satisfy core LSLS competencies by earning at least 15 CEUs from Academy-approved programs every two years.

AG Bell believes that LSLS certification should be a standard that defines professionals working with children who are deaf and hard of hearing who are learning spoken language in educational and therapy settings. LSLS certification should be considered the standard, in federal and state legislation and regulations, for providers with the highest level of qualifications who serve children pursuing a listening and spoken language outcome. The goal is for all families who choose a spoken language outcome for their child to have early and ongoing access to professionals who have achieved a high level of training and qualifications to facilitate listening and spoken language development.

References

    • Americans with Disabilities Act of 1990, as Amended, 42 U.S.C. 12101 et seq. (2008).
    • Early Hearing Detection and Intervention Act of 2010, Pub. Law 111–337, 124 Stat. 3588 (2010).
    • Elementary and Secondary Education Act of 1965, 20 U.S.C. 6301 et seq. (1965)
    • Florida Public School Accountability Act (CS/CS/HB 1255).
    • Gallaudet Research Institute (November, 2008). Regional and National Summary Report of Data from the 2008-08 Annual Survey of Deaf and Hard of Hearing Children and Youth. Washington, DC: GRI, Gallaudet University.
    • Joint Committee on Infant Hearing. (2007). Year 2007 position statement: Principles and guidelines for early hearing detection and intervention programs. Pediatrics, 102(4), 893–921.
    • The Education for All Handicapped Children Act of 1975, Pub. L. No. 94-142, § U.S.C.C.A.N. (1975).
    • The Individuals with Disabilities Education Act Amendments of 1997, Pub. Law, 105-17.
    • The Individuals with Disabilities Education Improvement Act of 2004, 20 U.S.C. §1400 et seq. (2004). Access from http://idea.ed.gov/
    • Oral Deaf Education (2011). List of Schools. Retrieved August 15, 2011 from www.oraldeafed.org
    • Section 504 of the Rehabilitation Act of 1973, as amended 29 U.S.C. § 794
    • U.S. Government Accountability Office. (2011). Deaf and Hard of Hearing Children: Federal Support for Developing Language and Literacy (GAO-11-357). Washington, D.C.: Author.

AG Bell supports reauthorization of the EHDI Act of 2008 because:

  • Prior to the passage of the original EHDI legislation in 2000, only approximately 45 percent of newborns in the U.S. were screened for hearing loss. Today, more than 95 percent of newborns are screened.
  • According to available evidence-based research, early hearing detection and intervention are essential for the development of listening and spoken language.
  • Continuing newborn hearing screening and closing the gap between diagnosis and intervention are crucial to a listening and spoken language outcome.
  • Research in early hearing detection and intervention should include information related to the acquisition and development of spoken language.
  • Parents should receive information about all communication options in an unbiased manner so they may make an informed choice as soon as possible.
  • As more children with hearing loss are identified and as a growing number of families choose a listening and spoken language outcome, an increased number of qualified service providers are needed.

AG Bell believes that the intent of IDEA is to support students with special needs in preparation for further education, employment and independent living. The Board of Directors of AG Bell supports the Individuals with Disabilities Education Improvement Act and efforts to ensure full federal funding for IDEA programs; and hereby calls for IDEA funding to be dedicated to:

  • Ensuring that families with children who are deaf or hard of hearing are informed of all the communication options.
  • Reducing any payments by families to obtain services for listening and spoken language for their children that will facilitate their development toward that outcome.
  • Placing a child who is deaf or hard of hearing and who communicates through listening and spoken language in an appropriate educational environment in order to facilitate his or her continued development toward that outcome.
  • Providing access to highly qualified professionals in the area of listening and spoken language, which would include individuals credentialed as Listening and Spoken Language Specialist educators or therapists.

Overview

Most group and individual health insurance plans do not cover the cost of hearing aids. As a result, several states have enacted legislative mandates for insurance coverage of hearing aids for children, although the qualifying ages vary from state to state. There is also a federal Hearing Aid Tax Credit bill under review by the House Ways & Means Committee that would provide a tax credit of $500 per device every five years for children under 18 and individuals over the age of 55.

Cochlear implants and other implantable devices are covered by most group and individual health insurance plans. However, guidelines for reimbursement set by Medicare have traditionally been lower than the actual costs of cochlear implant surgery, devices and other support services due to reporting errors and other problems with reporting costs associated with the procedure. This is problematic because the reimbursement levels set by Medicare traditionally serve as the benchmark for health insurance companies and for other federal agencies, such as the Veterans Administration. Lower reimbursement levels also affect cochlear implant centers and hospitals by creating a financial disincentive to offer or expand these services to Medicare recipients.

AG Bell Position

AG Bell supports full reimbursement of cochlear implant surgery and related services, as well as group and individual health insurance coverage and/or tax credits for hearing aids for individuals with hearing loss. 

  • Research studies show a direct relationship between auditory input and increased ability to develop spoken language.
  • Obtaining hearing aids or other hearing assistive devices can be a financial burden for some families. Therefore, these children may have less of chance for a spoken language outcome due to financial constraints. This is particularly true for disadvantaged children, creating a situation of “haves” and “have-nots” among children who are deaf or hard of hearing. 

Therefore, AG Bell supports a federal mandate for group and individual health insurance coverage for hearing aids, particularly for children.

Adopted by unanimous vote by the AG Bell Board of Directors on October 19, 2008.

AG Bell supports legislative and regulatory mandates for providing caption and communication access in all public venues, i.e., workplace and school environments, public lectures and speeches, sporting events, live performance venues, museums, movie theaters, broadcast (television and radio) content, multimedia and Internet content. AG Bell also supports access to personal technology such as Video Relay Service, captioned telephones and adaptive technologies for mobile telephone use.

AG Bell supports legislative and regulatory initiatives to promote the appropriate training and development of qualified professionals in the areas of providing captioning services, the handling of relay or TTY (voice and sign) calls, and of communications assistants as per captioned telephone.

AG Bell encourages the development of future captioning technologies (both open and closed) to increase captioning accessibility, such as speech recognition software and c-print. Should a form of captioning technology be developed in the future that is superior to today’s options, then AG Bell believes that technology can be phased in to replace aging captioning units currently in use.

AG Bell supports the maximum availability of communications access and accommodation for individuals who are deaf or hard of hearing regardless of preferred communication mode.

Approved by the AG Bell Board of Directors on June 24, 2010.

The Alexander Graham Bell Association for the Deaf and Hard of Hearing (“AG Bell”) supports reauthorization of the Individuals with Disabilities Education Act (“IDEA”).  The IDEA is beneficial to many children with disabilities, including children with hearing loss.  Since its inception, the IDEA has evolved, and been revised periodically, in an effort to better address the needs of children with disabilities.  This effort has included changes based upon experience and evidence-based practices.  In this spirit, AG Bell supports the following changes to the IDEA to better meet the needs of children with hearing loss particularly those children whose chosen communication mode is Listening and Spoken Language.  

  1. Ensure informed choice of communication mode.
    • Insert into the IDEA language requiring that objective, unbiased and comprehensive information, related to the different communication modes for children with hearing loss, be provided to parents of newly diagnosed children with hearing loss.
    • This language should be inserted in both Part B and Part C of the IDEA.
     
  2. Ensure services and programs are available through every local education agency (LEA) to implement the parents’ choice of communication mode.
    • The continuum of alternative placements language in IDEA Part B should also be placed into Part C of IDEA.
    • See also No. 7 below.
     
  3. Improve the coordination between Early Hearing Detection and Intervention (EHDI) and Early Intervention (EI).
    • Provide that newborn hearing screening and EHDI services and programs are all within Part C of the IDEA as part of Child Find.
    • As an alternative to the above, under Part C require that newborn hearing screening, EHDI services and programs, and Early Intervention are linked for reporting purposes (e.g., via contract) in order to avoid disruptions due to confidentiality or other Child Find impediments. 
     
  4. Address the difficulties to following up when children with hearing loss (or potential hearing loss) are not born in their state (or territory) of residence, or when families move from one state to another.
    • Provide that the birthing hospital and state of the birthing hospital must send information to the Part C agency (EI), including EHDI, in the state (or territory) of residence.
     
  5. Ensure that the communication mode of Listening and Spoken Language is adequately supported.
    • Explicitly add “Listening and Spoken Language” services to the list of related services in the IDEA.
    • This language should appear in both Parts B and C of the IDEA.
     
  6. Ensure that the appropriate setting for delivery of services is made available under Part C, and that those services for children with hearing loss are provided with the intensity required for them to progress.  
    • Include language in Part C providing that a child will start in the natural environment and move into the least restrictive environment as appropriate.
    • See also No. 2 above.
     
  7. Ensure better identification of the specific disabilities of children with multiple disabilities.
    • Require identification of each disability of the child.
    • Provide that, even for children who are not identified as multiply disabled, all disabilities of the child should be identified in the Individualized Education Program (IEP).
    • Specifically for children with hearing loss as one of their disabilities, state in Part C that the generic label of developmentally disabled is insufficient, and identification of hearing loss (deaf or hard of hearing) is required.
    • For children with multiple disabilities, require involvement of professionals with the respective backgrounds and expertise for each disability at all stages – evaluation, development of Individualized Family Service Plan (IFSP) or IEP, and the provision of services.
     
  8. Provide for the availability of attorneys’ fees to prevailing parties in IDEA Part C.
    • Insert the same language in Part C which currently appears in Part B regarding reimbursement of attorneys’ fees of prevailing parties.
     
  9. For preschool children with disabilities, remove the requirement that the child must   perform poorly academically before being deemed eligible for services under the IDEA.
    • For those children who have an IFSP up to age 3, provide that such a child is entitled to an IEP until at least age 5 in order to maintain skills (e.g., language and listening growth for children with hearing loss).
    • Exceptions:
    • When the child is assessed as significantly above average and when services are unnecessary in order to reasonably ensure the child will continue to perform above average.
    • In order to terminate the IEP before turning school age, a comprehensive functional assessment must be completed which reasonably justifies discontinuation of an IEP.

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  • The Volta Review 

    Stay current with the latest research through our peer-reviewed, online professional research journal

Seeking membership as a friend or family member?

Membership is always free for family & friends of people who are deaf or hard of hearing and helps connect individuals to our professional community!