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The Deaf Representation We Sorely Need

Overflowing with humor, Alexandra Grossi is making us laugh while keeping it real. Her social channels are full of videos sharing what it's really like to live as a deaf person who uses Listening and Spoken Language.

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Wearing her signature red lipstick and displaying her customary humor, Alexandra Dean Grossi posted a video to social media on March 29 about going to the bar as a deaf person who doesn’t sign. Profoundly deaf since birth, Alexandra was diagnosed at 21 months old and now has bilateral cochlear implants.

Three days later, the next video appeared: “My Fake Laughs as a Deaf Person.” From the polite chuckle to the over-enthusiastic laugh to the “wait, what?” laugh, Alexandra shows how we deaf people are guilty of bluffing. At the end, she shares some advice: “If you want to make sure we’re actually laughing with you, make sure you enunciate clearly.”

Since then, there have been several more, with no plans to stop.

Longtime AG Bell member Stacey Carroll shared Alexandra’s video, “Crazy [stuff] I hear as a deaf person,” on her Facebook page with the caption, “Alexandra is capturing my life so perfectly!” Indeed, this is the deaf representation that is sorely needed!

Alexandra’s Instagram profile alone reveals why she is the perfect person for this endeavor: “Writer/deaf, bold, and making the world more inclusive! I can’t sign but I can slay.”

 

 
 
 
 
 
View this post on Instagram
 
 
 
 
 
 
 
 
 
 
 

 

A post shared by Alexandra Dean Grossi (@agentcoco)

Life Update

Volta Voices wrote about Alexandra back in 2021 when she was trying to sell a pilot episode she co-wrote, called “Oral,” with a deaf protagonist who uses Listening and Spoken Language (LSL). Alexandra has been largely out of the public eye since then. Turns out she and her writing partner, Adrienne Marquand, were told to keep things under wraps while pitching their show. They landed an agent and were on the cusp of making it until the Writers Guild of America (WGA) and Screen Actors Guild (SAG) strikes hit. Deflated, they kept writing like madwomen, but “it’s demoralizing when the material you obsess over doesn’t see the light of day,” Alexandra said.

Still at IBM, Alexandra is the UX Lead Designer for IBM Accessibility and the Director of Inclusive Design for AIGA Raleigh. She also teaches an inclusive design graduate seminar at NC State’s College of Design. In her personal life, she became a mom; her son will be 5 years old this summer.

Craving Connection

Why now? Why the return to content creation? Alexandra had been waiting out the storm, but got tired of waiting for permission. “I wanted to make something where I didn’t need anyone else’s green light – just my own ring light,” she said. Realizing she had to make her own opportunities, she turned to the “small, small screen – social media!”

She was also craving connection. Having a baby in the middle of the pandemic as a deaf woman who lipreads was extremely isolating. She spent a long time quietly surviving, and now needs to connect with people who get it – or want to get it.

“That’s one of the reasons I started making social media content,” she said. “It’s my way of saying, ‘Hey, I exist! You too? Cool!’”

Normalizing Diversity Within Disability

Alexandra’s biggest goal is to show that the d/Deaf world is incredibly diverse and that the deaf experience using LSL is valid, complex, and oftentimes hilarious. She wants to help bridge the divide within the d/Deaf worlds. “We are more alike than different, and I think sharing our specific experiences can help illustrate that in a profound way,” she said.

Humor is her favorite way to educate. If she can make people laugh and learn, it’s a win. She decided to position herself as the deaf mashup of Tina Fey, Mindy Kaling, and Lucille Ball.

Interestingly, she used to shy away from being in front of the camera. She admitted that a big part of this is because she is deaf and didn’t see many deaf people on screen. “Not only that, I was the ‘wrong kind of deaf’ in the minuscule representation that existed for d/Deaf folks,” she said. “As it turns out, I love being in front of the camera. And it checks – I’m an only child. I love being the center of attention, and words of affirmation are my love language.”

Ultimately, Alexandra wants to normalize diversity within disability. “We’re not a monolith, and the more I can hammer that into the algorithm, the better,” she added.

Not surprisingly, the response has been overwhelmingly positive. People either laugh or say “same” – especially other d/Deaf or hard-of-hearing folks who haven’t seen themselves reflected this way before. “That kind of connection is priceless,” Alexandra said.

A Work in Progress

Alexandra is still figuring things out when it comes to making and posting the videos. Sometimes she writes a script; other times she goes full improv. Some videos take two takes, and 15 minutes, while others necessitate 20 takes over three days… “and a few minor identity crises.”

Social media guru Nathan Piland – a neighbor of Alexandra’s mom who has a large social media following and works for a creative agency in Los Angeles – was enlisted to help with strategy, content, and even hand-holding. Alexandra tries to batch film when she can, since mom-life and work-life balance always loom. The ideas usually come from moments that are unique to her deaf experience – those everyday experiences that are funny or frustrating or both – and she brainstorms how to bring them to life visually. That could mean playing multiple characters or it could be a list-style reel. She’s still testing out what resonates with people online and learning as she goes.

The goal is to consistently post weekly. And don’t worry, she doesn’t think she’ll ever run out of ideas. “It’s wild how many unique things we do as orally deaf people that we just…don’t think twice about,” she said. “We’re master assimilators, which means we’ve built this whole secret arsenal of workarounds just to navigate everyday situations. Once you really start noticing them, it does feel like there is limitless material!”

The challenge, of course, is taking those moments and turning them into snappy, 30-second reels that land. She is constantly aiming for that sweet spot between hyper-specific and broadly funny. “It’s a process – with a lot of takes and a little caffeine,” she joked.

New Video Series

Adrienne and Alexandra are working on a new video interview series called “Loose Lips, the Oral Tradition,” to keep creative juices flowing while they continue writing and developing projects. She described this as their 21st century digital-age version of sitting around the fire and exchanging ideas, telling personal stories, and connecting with fellow humans – all of whom have something creative, inspiring, funny, or interesting to share. “We are two unhinged storytellers on a mission to make sense of this batshit crazy world, one fascinating human at a time,” she said. The series will be released soon.

In the meantime, Alexandra said it has been incredibly empowering to put herself out there. “Also slightly terrifying, but mostly empowering!” she added.

Importance of LSL Deaf Representation

Alexandra said the videos she’s making are important because we’re here and people still act like we’re an urban legend. “There are so many of us oral deaf and hard of hearing folks, and yet we’re still met with confusion and hilariously incorrect assumptions,” she said. “I want to help represent this slice of the deaf experience that often gets left out of the narrative. And I want to do it with humor, heart, and a lot of pizzazz.”

Alexandra also had words for those of us who have ever felt invisible or misunderstood – especially within a community we’re technically ‘part of:’ “I hope this content makes you feel a little more seen and maybe laugh-snort in the process.”

You can find Alexandra’s unique voice on Instagram, TikTok, and Facebook

La representación de las personas con sordera que tanto necesitamos

Con su característico pintalabios rojo y haciendo gala de su humor habitual, Alexandra Dean Grossi publicó un video en las redes sociales el 29 de marzo sobre cómo comunicarse en un bar siendo una persona con sordera que no utiliza la lengua de signos. Alexandra, que tiene una sordera profunda de nacimiento, recibió el diagnóstico a los 21 meses y, actualmente, lleva implantes cocleares bilaterales.

Tres días después apareció el siguiente video: «My Fake Laughs as a Deaf Person» (Mi risa falsa de persona con sordera). Desde la risita educada hasta la risa demasiado entusiasta, pasando por la risa de «¿cómo, qué?», Alexandra muestra cómo a las personas con sordera nos gusta farolear. Al final, comparte algunos consejos: «si quieres asegurarte de que realmente se ríen contigo, debes pronunciar con claridad».

Desde entonces, ha habido más videos y seguramente vendrán más.

Stacey Carroll, miembro de AG Bell desde hace mucho tiempo, compartió el video de Alexandra «Crazy [stuff] I hear as a deaf person» (Los disparates que oigo siendo una persona con sordera) en su página de Facebook con el pie de foto: «¡Alexandra muestra mi vida a la perfección!». Lo cierto es que ¡esta es la representación de las personas con sordera que tanto se necesita!

El perfil de Instagram de Alexandra revela por sí solo por qué es la persona perfecta para esta empresa: «Escritora/sorda, audaz y ¡en favor de un mundo más inclusivo! No hablo la lengua de signos, pero arraso por donde voy».

 
 
 
 
 
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A post shared by Alexandra Dean Grossi (@agentcoco)

Sobre su vida

En 2021, en Voces de Volta Voices se habló sobre Alexandra, cuando trataba de vender un episodio piloto que había escrito en colaboración, titulado «Oral», cuya protagonista tiene sordera y utiliza LSL (Escucha y Lenguaje Hablado). Desde entonces, Alexandra no había vuelto a salir a la luz pública. Lo que ocurrió es que a ella y a su coguionista, Adrienne Marquand, les dijeron que mantuvieran las cosas en secreto mientras daban a conocer su serie. Consiguieron un agente y estaban a punto de conseguirlo cuando tuvieron lugar las huelgas del Sindicato de Guionistas de Estados Unidos (WGA) y del Sindicato de Actores (SAG). Desanimadas, siguieron escribiendo como locas, pero «es desmoralizador que el material que te obsesiona no vea la luz», comenta Alexandra.

Todavía en IBM, Alexandra es diseñadora jefe de Experiencia del usuario de IBM Accessibility y directora de Diseño Inclusivo de AIGA Raleigh. También imparte un seminario de postgrado sobre diseño inclusivo en la Facultad de Diseño de Carolina del Norte. En su vida personal, es madre de un niño que cumplirá 5 años este verano.

Un deseo de conexión

¿Por qué ahora? ¿Por qué volver a la creación de contenidos? Alexandra se había mantenido a la espera de que pasara la tormenta, pero se cansó de esperar a que le dieran permiso. «Quería hacer algo en lo que no necesitara la luz verde de nadie, solo la mía», dice. Al darse cuenta de que tenía que crear sus propias oportunidades, recurrió a la «pequeña, pequeña pantalla: ¡las redes sociales!».

También tenía un gran deseo de conexión. Tener un bebé en plena pandemia, siendo una mujer con sordera que depende de la lectura de labios, fue una experiencia de una gran soledad. Pasó mucho tiempo sobreviviendo en silencio y ahora necesita conectar con gente que la entienda, o que quiera entenderla.

«Esta es una de las razones por las que empecé a crear contenidos para las redes sociales», explica. «Es mi forma de decir: “¡Eh, que existo! ¿Tú también? ¡Genial!”».

Normalizar la diversidad dentro de la discapacidad

El mayor objetivo de Alexandra es mostrar que el mundo de las personas con sordera es increíblemente diverso y que, en concreto, la experiencia de las que utilizan LSL es válida, compleja y, a menudo, divertidísima. Se propone reducir las diferencias entre los distintos grupos de la comunidad de personas con sordera. «Somos más parecidas que diferentes y creo que compartir nuestras experiencias específicas puede servir para ilustrarlo de una manera profunda», opina.

El humor es su forma favorita de educar. Si consigue que la gente se ría y aprenda, es un triunfo». Decidió posicionarse como la combinación con sordera de Tina Fey, Mindy Kaling y Lucille Ball.

Curiosamente, antes le daba vergüenza ponerse delante de una cámara. Admite que, en gran parte, se debe a que es sorda y a que no se ven muchas personas con sordera en la pantalla. «Y además de todo esto, soy un “tipo raro de persona sorda” en la minúscula representación que existe de la comunidad de personas con sordera», afirma. «Resulta que me encanta ponerme delante de la cámara. Hasta cierto punto es lógico, siendo hija única. Me encanta ser el centro de atención y las palabras de afirmación son mi lenguaje amoroso».

En última instancia, Alexandra quiere normalizar la diversidad dentro de la discapacidad. «No somos un monolito y, cuanto más pueda introducirlo en el algoritmo, tanto mejor», añade.

Como era de esperar, la respuesta ha sido tremendamente positiva. La gente se ríe o dice «lo mismo me pasa a mí», sobre todo otras personas con sordera o hipoacusia que nunca se han visto reflejadas de esta manera. «Este tipo de conexión no tiene precio», afirma Alexandra.

Un trabajo en curso

Alexandra sigue trabajando en la creación y la publicación de los videos. A veces escribe un guion y otras improvisa. Algunos videos se realizan en dos tomas y 15 minutos, mientras que otros requieren 20 tomas a lo largo de tres días… «y algunas crisis de identidad menores».

El gurú de las redes sociales Nathan Piland, un vecino de la madre de Alexandra que tiene muchos seguidores en las redes sociales y trabaja para una agencia creativa de Los Ángeles, fue contratado para ayudar con la estrategia y el contenido, y ofrecer apoyo personalizado. Alexandra intenta grabar en lotes siempre que puede, ya que la vida de madre y el equilibrio entre el trabajo y la vida privada siempre están en primer plano. Las ideas suelen surgir de momentos típicos de sus experiencias con personas sordas –experiencias cotidianas que son divertidas o frustrantes, o ambas cosas– y piensa en cómo darles vida visualmente. Pueden dar lugar a la interpretación de varios personajes o a un reel tipo lista. Todavía sigue averiguando qué le gusta a la gente en Internet y aprendiendo sobre la marcha.

Su objetivo es publicar nuevos posts semanalmente. Y no se preocupa, porque no cree que se le acaben las ideas. «Es increíble la cantidad de cosas específicas que hacemos las personas sordas que nos comunicamos verbalmente y que no nos pensamos dos veces», asegura. «Somos maestras de la asimilación, lo que significa que hemos desarrollado todo un arsenal secreto de soluciones para afrontar las situaciones cotidianas. Una vez que empiezas a darte cuenta, tienes la sensación de que hay una cantidad de material infinita».

El reto, por supuesto, es convertir esos momentos en reels impactantes de 30 segundos que tengan éxito. Busca constantemente el término medio entre lo hiperespecífico y lo ampliamente divertido. «Es un proceso, con un montón de tomas y un poco de cafeína», bromea.

Nueva serie de videos

Adrienne y Alexandra trabajan actualmente en una nueva serie de entrevistas en video llamada «Loose Lips, the Oral Tradition» (Lenguas largas, la tradición oral) para mantener el flujo creativo mientras siguen escribiendo y desarrollando proyectos. La describe como la versión digital del siglo XXI de sentarse alrededor del fuego a compartir ideas, contar relatos personales e intercambiar anécdotas con otras personas que tienen algo creativo, inspirador, divertido o interesante que contar. «Somos dos narradoras desquiciadas con la misión de darle sentido a este mundo completamente loco, con una persona fascinante cada vez», afirma. La serie se presentará en breve.

Al respecto, Alexandra asegura que mostrarse en público ha reforzado su seguridad personal. «Me daba también un poco de miedo, pero sobre todo fue una experiencia reforzadora», añade.

Importancia de la representación de personas con sordera que utilizan LSL

Alexandra explica que los videos que hace son importantes porque las personas con sordera existen, aunque la gente siga actuando como si fueran una leyenda urbana. «Somos muchísimas las personas con sordera e hipoacusia que nos comunicamos verbalmente y, aun así, la gente sigue reaccionando con confusión y suposiciones incorrectas que dan risa». «Quiero ayudar a representar esa parte de la experiencia de la sordera que a menudo queda fuera de la narrativa. Y quiero hacerlo con humor, corazón y mucha chispa».

Alexandra también tiene palabras para las personas que alguna vez nos hemos sentido invisibles o incomprendidas, especialmente dentro de la comunidad a la que técnicamente «pertenecemos». «Espero que, con este contenido, muchas personas se sientan un poco más visibles… y hasta se rían a carcajadas».

Se puede ver el contenido único de Alexandra en Instagram, TikTok y Facebook

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