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Raising a Child with Hearing Loss? Marti Bleidt is Here to Help You Navigate the Journey!

As AG Bell's new Parent Support Consultant, Marti Bleidt is stepping into a vital role to encourage parents in all stages of their child's hearing loss journey.

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What if I just need to talk with someone?

Many parents feel scared and confused in the early days when faced with a hearing loss diagnosis for their child, especially if they don’t know anyone else who is deaf or hard of hearing. That’s where Marti Bleidt comes in. As AG Bell’s new Parent Support Consultant, Marti is stepping into a vital role to encourage parents in all stages of their child’s hearing loss journey.

Meet Marti Bleidt

Marti has four grown children, two of whom have a hearing loss. She worked in the Denver public school system for nearly 40 years as a teacher of the deaf and continues to work as an early intervention provider with EI Colorado.

Marti was a teacher of the deaf long before she had children. She always knew she wanted to work in special education, and while in school chose to focus on deaf education as her specialty. “Back in the day, you had to just choose what you wanted to do and which path you were going to take. My grandmother lost her hearing when she was a young woman, so that is probably the reason I decided to focus on deaf education,” Marti speculated.

It is a wild coincidence, then, that Marti’s oldest, Ally, happened to be born with a hearing loss. “It was kind of funny when Ally was first diagnosed,” Marti said. “Her hearing loss is mild in the low frequencies, so she could respond to some sounds. But it drops off to severe-to-profound in the mid and high frequencies. I kept saying she has a hearing loss, and my pediatrician would joke that I’m a teacher of the deaf, so I think everyone has a hearing loss!”

When Ally attended preschool at the age of 3, the school nurse did a hearing screening and immediately referred Marti to an audiologist and ENT. Initially, Marti was in shock. She thought perhaps it was an ear infection, but the nurse was firm in telling her no, Ally likely has a hearing loss. Fortunately, Marti had a friend within the school system who was also an audiologist. “It’s different when it’s your kid. My friend took me under her wing and helped me navigate a little bit of the medical side and find a good otolaryngologist and audiologist.”

Ally, who is now 40, began using bilateral hearing aids at age 3 and continues to use them today. She was fortunate to live in Denver, where there was a very strong oral program. Although Marti worked in a program that primarily used sign, she also knew Ally had some spoken language already and insisted she attend the oral elementary program even though it was on the other side of the city from where they lived. Ally was able to transition into mainstream school a couple of years later.

Marti has over 40 years of personal and professional experience navigating the early years of hearing loss.

After having a couple more kids who had typical hearing, Marti met her youngest daughter Salma, now 25, in her classroom when the girl was 3 years old. Through a set of unusual circumstances, Marti and her family began fostering Salma, who was born deaf and helped her receive her first cochlear implant.

However, as a foster parent, Marti was only able to have Salma live with them for about a year before she returned to her biological family. “Her biological family was very gracious and continued to let us have her on weekends and for vacations. And so, we stayed in close contact and it was nice. I’ve got to say, culturally, that probably wasn’t something that was really in them to do, but I think that they were kind of overwhelmed with all the kids and so I’m hoping that it helped them out a little bit.”

Salma continued to live with her biological family, but Marti made sure to stay an active part of her life. At age 9, Marti helped Salma receive her second cochlear implant. By the time Salma was in high school, she asked if she could move in with Marti so she could attend a different high school. And Salma has lived with them ever since.

Salma, Marti’s youngest daughter, hears with bilateral cochlear implants.

About 12 years ago, Marti became interested in early intervention after attending the First Years program through UNC-Chapel Hill. “I thought, well, that’s interesting, and maybe I’d like to work in early intervention,” Marti recalled.

Today, Marti is a semi-retired itinerant teacher, working when she is able to, and continues to work as an EI specialist. As part of EI Colorado’s Home Inclusion Program, Marti primarily begins working with families after their child’s diagnosis, around 3-4 months old, until they begin school at age 3. Marti walks with the family as they navigate the different services they’ll need to support their child in those critical first three years of development. Her role is to ensure families are receiving whatever early intervention services the child needs to meet the family’s goals and outcomes as outlined in their Individualized Family Service Plan (IFSP).

With over 40 years of both personal and professional experience in navigating the early years of hearing loss, and seeing how much early intervention and technology can impact a child’s growth and development, AG Bell is thrilled to welcome Marti into her new role as our Parent Support Consultant.

Parent Support Line and Parent Chats

As AG Bell’s Parent Support Consultant, Marti will be the face of our Parent Support Line and our popular Parent Chat events.

The Parent Support Line provides a safe place for parents to ask questions about hearing loss and communication options. Marti speaks both English and Spanish fluently, so parents are welcome to contact her to set up a meeting in either language to ask any and all questions they may have about hearing loss, hearing technology, and communication options.

Marti will also plan and host regular Parent Chat events. These popular meetings for parents are held several times a year for free. They include a featured topic and presenter followed by an opportunity to ask Marti and the other parents on the call questions.

“My background as a parent, teacher and EI provider gives me the perspectives of both sides…as a professional, I’m giving advice about what parents can expect. As a parent, I understand the want to advocate for what your child needs,” Marti said. “I try to be fairly unbiased about what I tell parents. I’ll tell them signing isn’t a bad thing and you can always learn sign, but if you want Listening and Spoken Language you need to start right away because those auditory pathways are not going to be there forever. I guide them to think about their family and how they communicate, and make sure they have the information they need to make a well-informed decision for their child.”

We asked Marti what she is most looking forward to in her new role with AG Bell:

“I’m looking forward to learning a lot of new things stretching myself, and helping families as much as I can.”

AG Bell’s Parent Support Line and Parent Chat event information is available on our website. To schedule a call with Marti, you can phone 202-204-4680 or email [email protected]. Both resources are sponsored by Cochlear Americas.

¿Tiene un hijo(a) con pérdida auditiva? ¡Marti Bleidt le ayudará a recorrer el camino!

¿Qué puedo hacer si necesito hablar con alguien?

Cuando reciben el diagnóstico de pérdida auditiva de su hijo(a), muchos progenitores se sienten asustados y confundidos en los primeros días, especialmente si no conocen a nadie más que tenga sordera o hipoacusia. Aquí es donde entra en juego Marti Bleidt. Como nueva asesora de apoyo a progenitores de AG Bell, Marti asume un papel fundamental para acompañarlos en todas las etapas del proceso de pérdida auditiva de su hijo(a).

Conozca a Marti Bleidt

Marti tiene cuatro hijos adultos, dos de ellos con pérdida auditiva. Trabajó en el sistema escolar público de Denver durante casi 40 años como profesora de sordos y sigue trabajando como proveedora de intervención temprana en EI Colorado.

Marti fue profesora de sordos mucho antes de tener hijos. Siempre supo que quería trabajar en educación especial y, mientras estudiaba, decidió especializarse en educación de personas sordas. «En aquellos tiempos, tenías que elegir lo que querías hacer y el camino que ibas a tomar. Mi abuela perdió la audición cuando era joven y, probablemente, por este motivo decidí centrarme en educación de personas sordas», explica Marti.

Por casualidades de la vida, Ally, su hija mayor, nació con pérdida auditiva. «El diagnóstico de Ally fue bastante curioso», comenta Marti. «Su pérdida auditiva es leve en las frecuencias bajas, por lo que podía responder a algunos sonidos. Sin embargo, en las frecuencias medias y altas pasa a severa-profunda. Yo insistía en que la niña tenía una pérdida auditiva, pero su pediatra bromeaba diciendo que, como era profesora de sordos, ¡creía que todo el mundo tenía una pérdida auditiva!».

Cuando Ally tenía tres años y empezó la educación preescolar, la enfermera de la escuela le hizo una prueba auditiva y de inmediato la remitió a un audiólogo y a un otorrinolaringólogo. Al principio, Marti estaba conmocionada. Pensó que quizá se tratase de una infección de oído, pero la enfermera le dijo con firmeza que no, que probablemente Ally tenía una pérdida auditiva. Afortunadamente, Marti tenía una amiga en el sistema escolar que también era audióloga. «Es diferente cuando se trata de tu hijo. Mi amiga me dio todo su apoyo y me ayudó a entender un poco más el lado médico, además de encontrar a un buen otorrinolaringólogo y a un audiólogo».

Ally, que ahora tiene 40 años, comenzó a usar audífonos bilaterales a los 3 años y los sigue usando hoy en día. Teníamos la suerte de vivir en Denver, donde había un programa oral muy sólido. Si bien Marti trabajaba en un programa donde se utilizaba principalmente la lengua de signos, Ally ya había adquirido algún lenguaje hablado, por lo que insistió en que asistiera al programa oral de primaria, aunque estuviese al otro lado de la ciudad. Ally pudo pasar a la escuela ordinaria un par de años más tarde.

Marti tiene más de 40 años de experiencia personal y profesional navegando los primeros años de la pérdida auditiva.

Después de tener dos hijos más con audición típica, Marti conoció a su hija menor, Salma, que ahora tiene 25 años, en su clase cuando la niña tenía 3 años. Por una serie de circunstancias inusuales, Marti y su familia empezaron a acoger a Salma, que había nacido con sordera, y le ayudaron a recibir su primer implante coclear.

Sin embargo, como madre de acogida, Marti solo pudo tener a Salma viviendo con ellos durante un año antes de que volviera con su familia biológica. «Su familia fue muy generosa y nos permitió seguir viéndola los fines de semana y durante las vacaciones. Mantuvimos un contacto cercano, que nos llenaba de alegría. Debo decir que, culturalmente, es probable que estas circunstancias no fueran habituales para la familia, pero creo que estaban un poco abrumados con tantos hijos y seguramente les sirvió de ayuda».

Salma, la hija menor de Martí, oye gracias a implantes cocleares bilaterales.

Salma siguió viviendo con su familia biológica, pero Marti se aseguró de seguir siendo una parte activa de su vida. A los 9 años, Marti ayudó a Salma a recibir su segundo implante coclear. Cuando Salma estudiaba secundaria, pidió mudarse con Marti para poder asistir a otro centro y desde entonces ha vivido con su familia.

Hace unos 12 años, Marti empezó a interesarse por la intervención temprana tras asistir al programa First Years (Primeros Años) de UNC-Chapel Hill. «Pensé que era interesante y que quizá me gustaría trabajar en intervención temprana», recuerda Marti.

Actualmente, Marti es profesora itinerante parcialmente jubilada, que trabaja cuando puede, y sigue ejerciendo como especialista en intervención temprana. Como parte del Programa de inclusión domiciliaria de EI Colorado, Marti empieza a trabajar con las familias tras el diagnóstico del niño(a), alrededor de los 3-4 meses de edad, hasta que comienza la escolarización a los 3 años. Marti acompaña a la familia en la búsqueda de los distintos servicios que necesitará para ayudar a su hijo(a) en estos tres primeros años de desarrollo tan importantes. Su función es garantizar que las familias reciban los servicios de intervención temprana que el niño(a) necesita para alcanzar las metas establecidas en su Plan individualizado de servicios familiares (IFSP, por sus siglas en inglés).

Con más de 40 años de experiencia personal y profesional en el proceso de pérdida auditiva en la infancia, y siendo consciente del impacto positivo de la intervención temprana y la tecnología en el desarrollo de un niño(a), AG Bell está encantada de dar la bienvenida a Marti en su nuevo puesto de asesora de apoyo a progenitores.

Línea de apoyo a progenitores y Charlas para progenitores

Como asesora de apoyo a progenitores de AG Bell, Marti será la cara visible de nuestra Línea de apoyo a progenitores y de nuestros populares eventos de Charlas para progenitores.

La Línea de apoyo a progenitores ofrece un espacio seguro para que los progenitores puedan plantear preguntas sobre la pérdida auditiva y las opciones de comunicación. Marti habla inglés y español con fluidez, por lo que los progenitores pueden ponerse en contacto con ella para concertar una reunión en cualquiera de los dos idiomas y resolver sus dudas sobre la pérdida auditiva, la tecnología auditiva y las opciones de comunicación.

Marti también planificará y organizará periódicamente Charlas para progenitores, que se celebran varias veces al año y son gratuitas. Estos encuentros incluyen un tema destacado y un ponente invitado, seguido de la oportunidad de que los progenitores planteen preguntas a Marti y a otros participantes.

«Gracias a mi experiencia como madre, profesora y proveedora de intervención temprana, tengo la perspectiva de ambas partes… como profesional, ofrezco consejos sobre lo que los progenitores pueden esperar. Como madre, entiendo el deseo de reivindicar lo que el niño(a) necesita», asegura Marti. «Trato de ser lo más objetiva posible cuando hablo con los progenitores. Les digo que el lenguaje de señas no es algo negativo y que siempre pueden aprenderlo, pero, si quieren desarrollar la Escucha y el Lenguaje Hablado, deben comenzar de inmediato porque las vías auditivas no estarán disponibles siempre. Les oriento para que piensen en su familia y en cómo se comunican, y me aseguro de que dispongan de la información que necesitan para tomar una decisión bien informada para su hijo(a)».

Le preguntamos a Marti qué es lo que más le ilusiona de su nuevo puesto en AG Bell:

«Tengo muchas ganas de aprender cosas nuevas, desafiarme a mí misma y ayudar a las familias en todo lo que pueda».

La información sobre la Línea de apoyo a progenitores y el evento de Charlas para progenitores de AG Bell está disponible en nuestro sitio web. Para concertar una llamada con Marti, puede llamar al 202-204-4680 o enviar un correo electrónico a [email protected]. Ambos recursos cuentan con el patrocinio de Cochlear Americas.

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Stay in the Loop with AG Bell!

Be the first to know about webinars, events, symposiums, and more.

  • Timely Announcements

    Stay informed about upcoming conferences, webinars, and public events.

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    Access toolkits, expert tips, and opportunities to engage.

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